Every day is a day to take care of your mental physical and spiritual health. As it is all connected, we experience these three things hand in hand, daily.
I live with chronic debilitating illnesses both physical and mental, every day is a battle i fight through.
I am not ashamed of living the way I do. Unfortunately there are more days than I’d like, where my chronic pain takes over. I’ve had a cold for over a week now and normal to me is my immune system on overdrive. With my inflammatory disease, my pain is sometimes not manageable. My main medication is a an snri, working as an antidepressant that also increases the serotonin and norepinephrine in my big brain that calms down my pain receptors. I picture them going off uncontrollably like a parade of fireworks. My medications help but at the same time they dont. Its funny and ironic because when im happy and working and creating its like im in another dimension where my body is just as happy, I go numb to my own conditions because I am energetically more positive. Its hard to wake up sometimes with no money and not think of drowning.
I notice changes in my body when I don’t drink enough water, stretch my body a few times a day, and when my stress levels increase so does this pain. Fibro isn’t something that can be cured and it’s not exactly something that has enough study to be fully understood. Taking the time to listen to myself and study my body greatly decreases my chances of a monthly flare up.
Right now I have a rheumatologist, pcp, psychiatrist, therapist, and an obgyn that have provided me with help in managing these conditions. Getting care from multiple doctors that take their time to listen to me has been a blessing I didn’t even think could happen.
I started therapy when I turned 25 thanks to my mom even though she doesn’t believe in it. Her gift to me was medical insurance that I’ve been able to use and help myself live a more manageable daily life. That does not mean it is easy for my mom to pay that every month, I have this little cloud over my head racking up the bill to pay her back because quite frankly it isnt fair that she has to put half of her check into me and she deserves more. I can’t describe the feeling of being able to go into Kaiser again though. I lost my medical insurance when I was 17 and since then have been seen by doctors that have harassed, lied, and hurt me. 18-25 living with illnesses that they believed I didn’t have because I was “too young to have that pain”???
Ex: Going into urgent care with multiple ruptures cysts in my uterus and being in a hospital room for 10 hours only to be given ibuprofen and sent home. I was told I couldnt have pneumonia last year because I was too young. (After catching pneumonia before it advanced to an infection in my lungs, catching covid before covid) I was treated unfairly by the first obgyn I went to who made me cry a river while he uncomfortably misdiagnosed me, told me to take medication and tried to tell me my allergic reactions were happening because I was drinking alcohol?!? Which I wasn’t (from my long, excruciating history with medication i know not to do things that upset my body even more)
I started a chronicallysickchronicles where I write in more detail about my monthly flare ups and what I did to manage and balance myself.. It is not an easy thing to live with chronic illnesses. It is also something that does not stop me from living. World mental health day was two days ago, it took me a while to write this. I think its extremely important to note that every day is a new day and chronic illnesses whether mental or physical or both look different on all of us. We experience everyday differently and are all connected by it.
You are not alone, I am not alone. We are unique and pretty fucking resilient..